Leadership Team

Jennifer May

IMG_0558-2-Jennifer

Jennifer May and her husband, Cameron, live in Pleasant Grove Utah with their three children Bryson (18), Makayla (15), and Stockton (11). Stockton has Dravet syndrome, a severe form of epilepsy. Cameron works as an investment coach at TD Ameritrade/Investools.

Born and raised in southern Idaho, Jennifer attended Brigham Young University where she majored in Business Education. She left school one semester short of a bachelor’s degree to accept a promotion in the international purchasing and transportation industry.

Through the next several years, Jennifer was active in the fitness industry. She and her husband became certified personal trainers and owned a fitness center of their own in Idaho. Later the Mays sold their business and moved back to Utah where Jennifer worked in sales and bookkeeping for Gold’s Gym. She was able to quit working just before the birth of their third child, Stockton.

With the onset of Stockton’s seizures and developmental delay, Jennifer became active in the epilepsy community. She became a HOPE (Helping Other People with Epilepsy) mentor with the Epilepsy Association of Utah and served on their board of directors. Shortly after receiving Stockton’s diagnosis of Dravet syndrome, Jennifer assisted with the development of the international non-profit organization IDEA League (International Dravet Syndrome Epilepsy Action League), now renamed Dravet.org.

Even now, Stockton is suffering daily with the seizures, medication side effects, and the co-morbid conditions that come with Dravet syndrome. Jennifer is one of three moms that have formed Hope 4 Children with Epilepsy to pursue legislation that would allow their children to have access to the promising high-THC/low-CBD cannabis (medical hemp) oil. Jennifer is also currently serving as a parent advocate on the Professional Advisory Board of the Epilepsy Association of Utah.

Annette Maughan

Annette Maughan

Annette Maughan and her husband, Glenn, live in Cedar Hills Utah with their four children: Glenn (Bug) – 10, Taylor – 8, Ava – 2 and Aiden – 6 months. Bug has refractory epilepsy caused, in part, by a Cerebral Folate Deficiency stemming from a Folate Autoantibody.

Born and raised in Northern Utah, Annette graduated from Roy High and immediately went to work in the retail industry.

After meeting Glenn, Annette learned about computer systems and worked for the Ogden City School District’s Federal Programs as a System Administrator. She followed Glenn to Chicago where Bank of America, located in the Sears Tower, employed her as an AVP of NT Systems. Moving from Chicago to California was a big step, but took them both to the Walt Disney Company where Annette was the System Administrator for their Broadband Division.

After leaving Disney, their first child, Glenn was born. Annette started her own technical consulting business while raising their son. The business, Digital Aces, Inc. did very well and supported the family for 4 years. Bug’s first seizure occurred 6 weeks shy of his third birthday. Once his seizures became a daily encounter, she put the business on hold and began to focus on finding more help for her now regressing son.

They moved their family back to Utah where Glenn took a position with Omniture, now Adobe, as a Director of Product Infrastructure and Annette began volunteering with the Epilepsy Association of Utah. In 2010, she accepted their offer to join their Board of Directors. In 2012, Annette was elected President of the Association and began her service to the epilepsy community of Utah.

In August, 2013, Annette was recruited to the effort to bring high-THC/low-CBD cannabis (medical hemp) oil to Utah after watching her son fail his 8th medication and suffering, on average, 3 seizures a day. Bug now has, at minimum, 2 seizures a day and is cognitively 18 months old.

Emilie Campbell

Emilie Campbell

Emilie Campbell and her husband, Branden, live in Cedar Hills with their two children: Katie (10) and Connor (6). Connor has refractory epilepsy of unknown cause. He’s been seizing daily since birth.

Branden and Emilie both grew up in Las Vegas where they attended high school together. After graduating, they served LDS missions and were married shortly thereafter. Emilie graduated from BYU with a BFA in Photography and has remained busy as a freelance commercial and portrait photographer. Her work has been published worldwide by clients such as American Baby Magazine, Nu Skin Int., Fender Guitars, Gretsch Guitars, 3Form, BYU, Layla Grayce and others. Branden is a professional musician and keeps the family busy traveling with him as he tours the world with his band, Neon Trees.

Branden’s career has allowed Emilie the freedom to spend the majority of her time tending to Connor’s special needs and seeking treatments for him from specialists across the nation. They have yet to find any medicine or treatment that has given Connor any seizure control. Fortunately, their line of work has allowed them to be active in raising awareness and funds for the epilepsy and autism community, specifically through Wasatch Mental Health. Also, Emilie has been instrumental in the formation of Help 4 Children With Epilepsy. She and Branden have lived in Utah County for 20 years and consider it home.

Connor’s seizures have made him unable to transition into deep sleep (REM) without clusters of tonic spasms and drop attacks. A typical night for him means 5-15 episodes of waking and seizing. Sleep has become a daunting enemy, although it’s what his body needs most. Because of his constant state of seizure activity, his developmental delay is severe. He has no words, few fine motor skills, and functions as an 18-month-old. Connor’s last hope is a high-THC/low-CBD cannabis (medical hemp) oil.

April Sintz

April Sintz

April and her husband, Kyle, live in South Jordan and have four children. Isaac (7) is their second and was born with Dravet Syndrome, a catastrophic form of epilepsy. Demi (13), Miabella (4), and Jakob (1) are Isaacs’s siblings. Kyle is a financial consultant in Portfolio Advisory Services at Fidelity Investments.

April spent her young adult years employed in the emergency department at Alta View Hospital. When their first child was born, she transferred to Admitting before moving on to work as a medical transcriptionist for a dermatologist’s office. Seven years later, after giving birth to Isaac, April created a sub-contracting company, Sintz, Co., where she worked as a financial field consultant for various lending and banking institutions.

When Isaac’s seizures grew to dozens each day, April stopped working to be a full-time caregiver for her, then three, children. She was committed to helping Isaac and, with an infant in tow, spent her days at appointments and therapies. After receiving Isaac’s diagnosis of Dravet syndrome, April scoured the web looking for information and support. She found the IDEA league (International Dravet Syndrome Epilepsy Action League) and reached out to them. They sent Jennifer May to comfort and offer support.

April has become a passionate advocate for Isaac and others with epilepsy. She has been serving on the board of directors for the Epilepsy Association of Utah, working as Director of Support Groups and Purple Day Ambassador. Now, because a high-THC/low-CBD cannabis (medical hemp) oil holds new hope for Isaac and other children like him, April is playing an active role in furthering the efforts of Hope 4 Children With Epilepsy.